Community Engaged Disability Informatics at Carolina

Connecting Carolina Communities with Information

Autism PINS (Parent Information Needs Survey)

This 2015 internet-based survey of 935 parents of children and adults on the autism spectrum in North Carolina examined parents’ information needs, information seeking habits, positive and negative information seeking experiences, and how and where they chose to look for information related to their children.

Publications:

Gibson, A. N., & Hanson-Baldauf, D. (in press). Beyond Sensory Story Time: An Intersectional Analysis of Information Seeking Among Parents of Autistic Individuals. Library Trends.

Gibson, A. N., Kaplan, S., & Vardell, E. (2017). A Survey of Information Source Preferences of Parents of Individuals with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 1-16. [PDF]

Data Summaries

Dynamic version [URL]

 

Four things that frustrate North Carolina parents about looking for autism-related information

Parent Needs Themes [PDF]

Raw Data

PINS Data available upon request.